My name is Ayden Soares and I am 9 years old. I was diagnosed with Polyarticular Juvenile Idiopathic Arthritis in the spring of 2014 and have over 10 joints that are affected. When diagnosed, my right wrist didn't move well and needed extra protection, and because of this my right arm had half the strength of my left.
My mom gives me weekly low dose injections of Methotrexate (same drug used to treat cancer - Chemo) to attempt to manage the inflammation, but doing this makes me nauseous and suppresses my immune system. This means fighting a common cold will be harder for me to do. I take pain medication when needed to help me keep going in the day. I take Folic Acid pills weekly to help with the bone development and I take naproxen twice a day to also help with inflammation so that I can continue to go to school and try to enjoy the same activities my friends like to do. Because of these medications, my inflammation has come down, and as of April 14th, 2016....I am currently ARTHRITIS FREE! This doesn't mean it can't come back though, so I have to continue my medication to keep it away. I don't feel any pain right now and I'm so happy to feel like this. I never knew what it felt like to be pain free!
Before the medication, my right wrist was fused straight, I had swollen knees, ankles, toes, and fingers and couldn't lift a piece of paper off the ground from no strength or mobility.
It is very important for me to be as active as possible to keep my joints moving. I belong to an amazing Tae Kwon Do club called OMAC Martial Arts and I train there 6 days a week. I have had some exercises modified for me in the past since I couldn't bend my wrist well. They have helped play a big role in keeping me active and the attitude that I can do anything I put my mind to. I also do soccer and swimming when I can.
Arthritis doesn't kill you, but you have to live with it your WHOLE LIFE! It's not fair for a child who has many years ahead with this debilitating disease!
It is very important for me to bring awareness to my friends, teachers and family so that everyone understands that Arthritis can affect anyone, not just the elderly and it is for this reason I participate in the Walk to Fight Arthritis. Please help and support my campaign and donate. Thank you! #kickarthritis!
Please support The Arthritis Society and our team!
On Sunday, June 4, 2017, our team is participating in the Walk to Fight Arthritis. We're walking and raising funds to help find a cure and support the over 4.6 million Canadians who live with the pain of arthritis.
You can make a difference in their lives, and help researchers search for improved treatments by making a donation to any of our team members. Together, with your support, we can reach our fundraising goal for this very important cause.
Please join the movement and make a donation to support this important cause. Thank you so much!